Downs Syndrome Resources

Author: Joan Murphy

 Communication

This link connects to the home page of the Augmentative and Alternative Communication systems (AAC) which involves the use of personalized methods or devices to supplement a person's ability to communicate.

http://www.circleofinclusion.org/english/augcomm/index.html

This link connect to the abstrat for a paper on

"Using augmentative communication with infants and young children with Down syndrome"

Foreman P., Crews G. Down Syndrome Research and Practice 5 (1): 16-25 (1998)

http://www.circleofinclusion.org/english/formsarticles/Articles/articleindex.html

 Down’s Syndrome Ireland

This link connects to the homepage of Down Syndrome Ireland. This organisation aims to help people with Down syndrome make their own futures as bright and independent as possible by providing them with education, support and friendship every step of the way.

http://www.downsyndrome.ie

 Down’s Syndrome Centre

This link connects to the homepage of the Downs Syndrome Centre which aims to provide an online community for Irish families and those involved in the care of people with Down syndrome. They aim to provide access to a support network and up-to-date information on national and international news and developments relating to Down syndrome.

http://www.downsyndromecentre.ie/

 Down Syndrome Guideline Booklet

This link connects to the Medical Management Guidelines for Children and Adolescents with Down Syndrome in Ireland. This booklet can be downloaded in PDF format from this website. 

http://www.downsyndrome.ie/index.php/information-centre/publications-and-information-packs

 Down’s Syndrome Medical Interest Group

This link connects to the home page of the Down’s Syndrom Medical Interest Group.mIt aims to  provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland.

http://www.dsmig.org.uk/index.html

 Entitlements

 This link connects to the relate imformation booklet of Information for Parents with Children with Disabilities which includes entitlements.

http://www.citizensinformationboard.ie/publications/relate/nov2005.pdf

 Growth Charts (UK/Ireland) web link

This link connects to the Downs Syndrome Growth Charts for the UK and Ireland. It can be downloaded for PDf format. The data is from around 6000 measurements of 1100 healthy children living throughout the UK and Republic of Ireland. Growth can be charted from term to 18 years

http://www.dsmig.org.uk/publications/growthchart.html

 Inclusion Ireland (previously known as NAMHI)

This link connects to the homepage of Inclusion Ireland which aims to support the right of people with an intellectual disability living and participating in their Community with equal rights as citizens to live the life of their choice to their fullest potential.

http://www.inclusionireland.ie/

 Irish Association of Speech and Language Therapists (IASLT)

This link connects to the homepage of IASLT which is the recognised professional association of Speech Language Therapists in Ireland. They aim to:

  • Establish and maintain professional standards.
  • Represent profession at national and international level.
  • Support continuing professional development through education and research.
  • Co-ordinate gathering and dissemination of information and promote exchange of professional information.
  • Evaluate, accredit and monitor speech and language therapy training courses.
  • Examine and validate the professional qualifications of speech and language therapists who wish to come to Ireland to work.
  • Develop such policies as are necessary to support the aims.
  • Maintain a register of members.

http://www.iaslt.com

 Irish Association of Speech and Language Therapists in Private Practice (IASLTPP)

This link connects to the frequently asked questions section of the IASLTPP website. IASLTPP is the Irish Association of Speech and Language Therapists in Private Practice is a group consisting of over 50 fully qualified speech and language therapists operating private practices throughout Ireland

http://www.iasltpp.com/faqs.html

 Lámh

This link connects to the homepage of Lámh which is a manual sign system designed for children and adults with intellectual disabilites and comunication needs in Ireland.

http://www.lamh.org

 National Disability Authority (previously known as NRB)

This link connects to the National Disability Authority.

http://www.nda.ie/

 National Cochlear Implant Programme: Ireland

This link connects to Beaumont Hospitals homepage. If you click in the appropriate link in the department index you will navigate to information on the Cochlear Implant Programme of Ireland.

http://www.beaumont.ie/index.jsp?p=105&n=350

 Schedule of Health Checks

This link connects to the schedule of health checks in table format which can be downloaded from a PDF file. 

hthttp://www.downsyndrome.ie/index.php/information-centre/publications-and-information-packs

 Teachers Services

This link connects to the educational resource information section of the Citzens Information Board.

http://www.citizensinformation.ie/categories/education/primary-and-post-primary-education/educational-supports/

This link connects to scoilnet which is a portal for Irish education.

http://www.scoilnet.ie/T_Sen.aspx

This connects to the information leaflet for the Visiting Teacher Service.

http://www.education.ie/servlet/blobservlet/visiting_teacher_service_info_leaflet.pdf?language=EN

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